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Being involved in such a program ensures that the experiences I endured during my own cancer battles, along with the processes I went through, can be put to good use in assisting present and future consumers.

- Ray Kelly

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My Cancer Care Record

My Cancer Care Record is a resource that supports people affected by cancer to store and record their medical and health-related information in one place.
It provides tips on questions and information to ask health professionals.  It can also assist you to record specific details that you may be frequently asked and find hard to remember.

The folder has eight key sections to help you organise your medical information. 

Use the table on the right to find information and pages relating to that section:
 

  • Appointments

  • Medication

  • Contacts

  • Support

  • Financial & legal

  • Tests & results

  • Health Summary

  • Treatment

 

The folder is aimed at helping with issues related to managing information when you have multiple treatments provided by multiple people, across different services and over long periods of time. It can assist you to be able to communicate across the variety of health care professionals involved in your care.

 

My Cancer Care Record can also help the clinicians working with you.  It can provide easy access to information they often require such as:

  • copies of your test results and letters from other hospitals/doctors

  • current medication, medical and family history, current treatment schedules

  • details of side effects & symptoms you might have had since your last appointment

  • contact details of other clinicians involved in your care

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Sections in My Cancer Care Records

Appointments


This section allows you to store and record the dates and details of your medical and health-related appointments. There are blank monthly calendars to help manage your appointments and places for you to write yourself notes or things you would like to ask during appointments. TIP: It is a good idea to have your appointment calendar with you, so that any future appointments may be coordinated with existing appointments. Click on the links below to fill in or print extra pages for your My Cancer Care Record folder:




Contacts


You can record the names, numbers and details of the health-related people and services that are part of your treatment and care. Keep this information updated and have it with you at medical appointments, so your health care professionals can see who else is involved in your care and can contact them if needed. TIP: Ensure your family/friends are also aware of your key contacts. This will be helpful if they need to urgently contact a member of your health care team. Click on the links below to fill in or print extra pages for your My Cancer Care Record folder:




Financial and legal


During your care and treatment you may face different medical and treatment related costs. What you pay will depend on whether you are treated as a public or private patient; the type of hospital/service you attend and the sorts of medication/equipment needs you might have. You may also have to cover the costs of travel and accommodation to attend medical appointments. TIP: It is a good idea to keep a record of your medical and treatment-related costs and travel requirements. This may help you to:

  • claim financial assistance or support
  • claim from your health fund or other insurance providers
  • manage your financial expenses
  • keep records for taxation reasons
  • claim travel and accommodation costs
  • apply for benefits, pensions or reimbursements
  • keep records of when you reach limits such as the Safety Net for Medicare or the Pharmaceutical Benefits Scheme, or your private health fund limits.
Please find blank forms that you might want to use to record your medical, treatment and travel-related information and costs. Click on the links below to fill in or print extra pages for your My Cancer Care Record folder:




Health summary


These are the sorts of details you will often be asked for when attending hospital and other health-related appointments. Such details include your medical conditions, emergency contacts, operations and known allergies. TIP: It is good to fill in this information and keep it up to date by adding in any new information such as recent procedures. Click on the links below to fill in or print extra pages for your My Cancer Care Record folder:




Medication


It is useful to keep a record of any medications you are taking. This is information members of your health care team will regularly ask you about. You should tell your doctors and other health care professionals about any other medications/supplements/vitamins that you are taking or are planning to take. Keeping medication information helps you to:

  • know the names of the medications you are taking
  • know why you need to take them
  • remember when and how to take them
  • keep track of when you started/stopped each medication
  • know about any side effects
TIP: Keep copies of:
  • medication summaries or lists
  • prescriptions/scripts for medications
  • medication information sheets
Use the medication summary table to record any medications/supplements/vitamins you are taking. Click on the links below to fill in or print extra pages for your My Cancer Care Record folder:




Support


You may face a range of practical, emotional and physical challenges during and after your treatment for cancer. Supports and services are available to help you with those needs beyond your medical or surgical treatments. These services and supports can be provided in the hospital setting and also in the community. TIP: When treatment stops or ends, ask your health care team to give you information on tips to stay well.




Tests and results


Tests are done so that your health care team can be sure of your cancer type, to work out the best treatment for you and to see how treatments are affecting you. Tests can include blood tests or scans such as an MRI or CT scan. Sometimes they can be procedures such as a biopsy or a colonoscopy. Test results are usually given to the doctor who ordered the test. In most cases it is possible for you to have a copy of the results, just ask your doctor or health care professional. TIP: Keeping your test results/reports is a good idea so that:

  • you can remember the dates and results of tests and compare them to old results
  • you can keep track of scans/investigations you have had and where these were done
  • you can show these reports/results to members of your healthcare team
You may wish to record your test results in the table provided. Click on the link below to fill in or print extra pages for your My Cancer Care Record folder:




Treatment


This section includes pages for you and your health care team to record and store the relevant information related to your specific cancer treatment. TIP: Recording treatment-related information will help you and your family/friends to remember details such as:

  • the type/name of the treatment you are having or have had
  • important dates such as operation dates and when treatment started/stopped
  • who you were treated by
  • what you need to be aware of during and following treatment
  • symptoms/side effects of treatment
Click on the links below to fill in or print extra pages for your My Cancer Care Record folder:





 
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The Victorian Integrated Cancer Services are supported by the Victorian Government 

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Heidelberg, VIC 3084
P: (03) 9496 3322
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The Victorian Integrated Cancer Services acknowledges Aboriginal and Torres Strait Islander people as the Traditional Custodians of the land and acknowledges and pays respect to their Elders, past and present.

We are committed to safe and inclusive work places, policies and services for people of LGBTIQ communities and their families.